2014- Hanson Quickel
Senator Randy Vulakovich today introduced legislation that would ensure that
expectant mothers who receive a prenatal diagnosis for Down Syndrome receive
the support and education they need to care for and enhance the quality of life
for their child.
Bill 1339, also known as the Down Syndrome Prenatal Education Act, sets
requirements for health care professionals and the state Department of Health
to provide essential guidance for those expectant mothers.
this bill ‘Chloe’s Law’ after an incredible child with Down Syndrome,” said
Senator Vulakovich, who serves as Chairman of the Senate Aging and Youth
Committee. “My legislation would simply require health care practitioners to
provide complete information to women who receive a prenatal diagnosis for Down
Syndrome so that they are better informed with regard to the positive outcomes
of giving birth to a special child such as Chloe.”
Kondrich, a child with Down Syndrome and Senator Vulakovich’s inspiration for
the bill, said, “I am very intelligent and sophisticated and I was made
father, Kurt Kondrich, added, “Chloe's Law will ensure that families who are
expecting a child like my daughter Chloe will receive factual, supportive
information about the services and resources that are available and they will
be able to see that children with Down Syndrome possess many abilities and are
a priceless gift to their families and communities.”
SB 1339, the Department of Health would make available up-to-date,
evidence-based information about Down Syndrome that has been reviewed by
medical experts and national Down Syndrome organizations. The information would include physical,
developmental, educational and psychosocial outcomes; life expectancy; clinical
course; intellectual and functional development; treatment options.
would also include contact information for First Call programs, support
services, hotlines specific to Down Syndrome, relevant resource centers,
clearinghouses and national and local Down Syndrome organizations.
legislation has been signed into law in Kentucky and Massachusetts.
is supported by Pennsylvania’s Physician General, the Arc of Pennsylvania, the
Central PA Down Syndrome Awareness Group, the Down Syndrome Association of
Pittsburgh, the Eastern PA Down Syndrome Center, the Montgomery County Down
Syndrome Interest Group, the Jerome Lejeune Foundation USA, and Parent to
Parent of PA.